By Liz Arendt, bilateral cochlear implant user and Chairperson of the Hertfordshire branch of Hearing Dogs for Deaf People

Though I wasn't aware of it at the time, I started down the long slippery slope towards deafness when I was just eight years old, a side effect of scarlet fever. But it was only when I entered the teaching profession in my early twenties that it had any impact on my life. A routine medical check picked up on my hearing loss and I was told I had to get a hearing aid. In those days, hearing aids were ear plugs and a box with a long wire dangling down. Fortunately, they only said I had to get one, they didn't actually say I had to wear the thing, and I got by without any difficulty without my aid.
On changing jobs some six years later, the same thing happened but, by this time, hearing aids were the "behind the ear" type and I did actually wear it. For the first time, I realised just how bad my hearing had become. Over the years that followed, my hearing gradually deteriorated, though I could still manage the telephone with my left, better, ear. Then, suddenly, disaster struck! Overnight I lost most of my hearing in that ear, and I was left with limited hearing in the - now better - right ear. I got an aid for the left ear, but it was of little help.
My hearing continued to deteriorate and gradually, it became more difficult to do my job. In the classroom I couldn't make out which child was speaking, I could hear on the phone only in a quiet room via an amplifier and I could no longer invigilate exams, chair or take minutes at meetings or even listen to the radio. The crunch came when there was a minor accident in my laboratory (I taught science) and I did not hear the children calling me. The time had come for me to take early retirement on medical grounds.
One year later I had my first meniere’s disease attack and most of my remaining hearing just went overnight. With two hearing aids and lip-reading (which I could do pretty well) I was getting about 30% of what was being said. State of the art private hearing aids improved things slightly, but telephones, radio, TV, etc. were a thing of the past. I bought a minicom, switched on the TV subtitles and mourned the loss of my radio and in particular, the absence of music in my life. I sold my piano and guitar and shut my flute away in the cupboard. As a classical music lover, it was hard to come to terms with. The only consolation was my lovely hearing dog, Ruffles, who became my lifeline as well as my much loved companion.
Then, on a routine visit to the ENT hospital in Grays Inn Road, I was seen by a new audiologist, who asked me if I had considered a cochlear implant. I had, some ten years earlier, when they were very much at the pioneering stage, but had been told that, with nerve damage, I would not be a viable candidate. I was referred to the clinic at the ENT hospital and, 18 months later, went for my implant operation. When I was first "switched on" in May 2004 everything sounded like Donald Duck under water but, once I got used to the new sound source, I was able to hear far better that with the hearing aids. The combination of the implant in my left (worse) ear and the hearing aid in my right ear gave me 65% hearing. The only disappointment was that the sound was just not clear enough for me to use the telephone, so the minicom remained in place. Perhaps if I had the right (better) ear done, I might have had better results, but I did not want to take that risk, as the surgery destroys any natural hearing and, if anything had gone wrong, I would have been left totally deaf.
Two years later I made the decision to have the right ear implanted as well. And yes, the outcome was far better than the left one. With the two implants in place I now have about 90% hearing: absolutely fantastic! I use the phone (including a mobile!), listen to the radio and TV and can take full part in a conversation. Ruffles of course was now redundant during the day but still on duty at night time when I remove the processors and am then totally deaf. This is too confusing for a dog, so I have to pretend to be deaf all the time in order to let the dog work! Sadly Ruffles has now passed on but, because of my total night time deafness, I still am classified as deaf and I now have Maple, a golden retriever, training to work for me.
What hearing people often fail to understand is the total isolation felt by someone who loses their hearing. Their confidence is sapped and many deafened people just withdraw from the hearing world, as they cannot cope with the demands of everyday life in a largely hearing world. My hearing dog, as well as alerting me to the sounds in my own home, is my ambassador to the outside word, informing others of my disability so that they became more helpful and less dismissive of my inability to communicate. Now that my hearing has been restored I have the best of both worlds: the joys of near normal hearing and the support of my dog at the times when I am deaf. I can also "switch off" in noisy situations - when the music gets too loud, the road drills are at full blast or the restaurant is just too noisy! I am probably better off than most of my hearing friends!
For more information on the Hertfordshire branch of Hearing Dogs for Deaf People, please visit www.herts-hearing-dogs.org.uk

Comments
Hi Liz, I read your post of great interest. Purely the fact that I'm going to have a simultaneous bilateral cochlear implant next Friday! I was only given the go ahead for my 2nd implant about a couple of weeks ago. I was born seriously deaf in 1969 and went profoundly deaf in 2004. I was referred from ENT to a cochlear implant team in the south of England. I was successfully accepted at the time to have a CI and was implanted in Aug 2005 and was switched on in Sept 2005. Unfortunately the CI failed in June 2006. I couldn't have a re-implantation operation at the time as was pregnant. However to date, I was going to have the re-implantation in June 2007 and just before I was going to, I was asked if I would like to be bilateral and said yes with thinking about it a great deal, it was a difficult decision to make. The 2nd implant will be in my "dead" ear and so the journey will be unknown and interesting. I hope to be able to share my experiences with you if I can via email. Bilaterals is a rare thing is this country especially for adults.
Posted by: Elaine Webster | September 8, 2007 07:18 PM
Fantastic that you're bilateral. I'm having a simultaneous bilateral cochlear implant operation on 14th Sept. Is there anybody else in the UK who is a simultaneous bilateral cochlear implant user? Elaine
Posted by: Elaine Webster | September 12, 2007 10:50 PM
I was just told I am a candidate for an implant--the doctor seemed reluctant to encourage bilateral implants even though my hearing is in the 32/40% range.
Would you and those others with bilateral implants please tell me about their decision to go bilateral. Any advice would also be appreciated.
Posted by: Gloria Richman | June 5, 2008 11:07 AM